Support Groups 

The United Network for Organ Sharing (UNOS) has a comprehensive listing of support groups, sorted by state, that includes the names and phone numbers of individuals to call for more information. Click here to access the Support Group section of the UNOS Web site.

There are many different types of support groups for transplant patients and their families. Transplant patients have said that sharing concerns, fears, difficulties, experiences, and success stories with others can be comforting.

Many patients enjoy reaching out to others, gaining confidence through shared experiences, enjoying social activities, and finding opportunities to promote organ and tissue donation. It also can be encouraging for patients to meet recipients who have had their transplants for several years.

Types of Support Groups for Transplant Patients

• Hospital Support Groups – Usually run by the hospital transplant coordinator, social worker or other member of the transplant team. May consist of patients who are pre- or post-transplant or are hospitalized with transplant-related problems.

• Local Support Groups – Usually run by transplant patients. Groups consist of pre- and post-transplant patients and their families. Members who have already had their transplant help others with the adjustment to everyday life.

• Telephone Networking – Available through a hospital or support group. Designed to introduce patients to others who share similar experiences, from the comfort of a patient’s own home.

• Internet Support Groups – Can provide patients with a broad range of experiences from all over the world. Also allow patients to ask personal questions that they may not feel comfortable asking in person.

• Professional Organizations – These groups provide educational seminars, materials, and activities, and may conduct fundraising events to support research and help shape healthcare policy.

Click here to access the Support Group section of the UNOS Web site.

Click here for a detailed list of support group activities on the Transplant Living Community Calendar.